Jeff Allen - Positive CHampions

On Sunday November 11th at 9pm EST we will be speaking with Activist Jeff Allen on the POZ I AM Radio Show. Jeff Allen tested positive in 1985. He was a drug addict using heroin and cocaine and reckless in his behavior. Jeff was homeless and living in my car for more than two months. Jeff lived in Key west with his partner of 12 years where the HIV community was small and compact. When it came to the end of his life he wanted to leave and go where he was not so well known. After his passing Jeff moved to Deland Florida right outside the Daytona Beach area. He was very frail and weak, but needed a purpose in his life. This is when Jeff first started volunteering with HIV/AIDS in 1995.

Living with no T-cells for 3 years and a viral load 1,650,000 Jeff contracted MAC (Mycobacterium avium complex) from potting plants in my yard. “MAC,” is the name of a group of germs. These germs can infect people who are living with HIV. Jeff had to go on an IV drip for 5 days.

Then Jeff got involved with his local Ryan White consortium (Partnership for Comprehensive HIV/AIDS Planning PCHAP) he ended up chairing the consortium for 7 years. He then decided he wanted to make a difference on the national level. Jeff knew he wanted to get involved with the homeless in some capacity since he was previous homeless. Jeff also knew that he wanted to help improve the quality of care that HIV/AIDS patients receive. So he applied and was accepted in several different positions

Then in 2011 working with his consortium, they needed to address the out of care numbers of clients that they have in the local area. After conducting focus groups and soliciting surveys, it was decided that the real issue was the fear and stigma that is associated with HIV/AIDS. People did not want to get tested in areas know to treat or counsel HIV positive people for fear of being associate with having the disease or being gay. So Jeff created the Positive Champions Speakers Bureau to deal with fear and stigma. www.positivechampions.org

Listen to the interview 

My Reflection of Positive Living 15

This past week I had the opportunity to present and attend the Positive Living 15 Conference in Fort Walton Beach Florida. I arrived on Thursday night and found myself very excited. I was like a 6 year old on Christmas eve. You see when I attended this conference last year it unexpectedly changed my life. So this year I wasn't nervous. I knew I was about to have an amazing experience. Plus I knew more people attending the conference this year then I did the year before. So I didn't have to stay in my hotel room and be anti-social. I spoke there last year but this year it was going to be different. Since my friend Dab Garner wasn't able to make it this year. I promised to spread his 30+ year message and take plenty of pictures with my Dab the AIDS Bear. I and many other Ambassadors of Hope were there representing for Dab the AIDS Bear Project.

 

 

Purchase your own Dab the AIDS Bear - click here

This year I had the pleasure of having my POZ I AM Radio co-host Jeromy Dunn join me on stage. Can you believe that Jeromy and I have been hosting the show together for almost 4 years and never met face to face before this conference. So after registration and getting settled in my room I was off to meet my co-host for the first time. I went down to the lobby bar and had beer while I was waiting to meet Mr. Dunn. Then Jeromy entered the lobby. I excused myself from the conversation I was having and ran up behind him and gave him a hug. When he turned around it was like seeing an old friend from high school. It felt like I knew my whole life. After 4 years of talking on the phone almost every Sunday meeting Jeromy alone made the trip to the sunshine state worth it.

Fridays Brunch was at 10am. Then it was time for Activate U Advocacy Academy presented by Jesse Fry, Butch McKay and Rick Vitale. This is one of my favorites parts about the conference. The half-day event presented us with the latest information and techniques for effective advocacy to help shape the future of HIV/AIDS treatment and prevention. They taught us about the history and continued importance of HIV/AIDS Advocacy. They covered how to build  meaningful relationships with your representatives. They also gave updates on important issues like the AIDS Drug Assistant Programs.(ADAP) Medicaid and Housing. This will kick start the advocacy in anyone. After Activate U we had the opportunity hear Kali Lindsey on NMAC covered the Epidemic from start to finish.I thought Kali was a great speaker. He made me make a promise to myself to never be silent in a room full of activist. 

 

Photo Credit Mario Ferri

Next was a bunch of breakout sessions. With so many amazing presentation it can difficult to decide what to go to. One of my favorite activist, Joey Wynn of the ADAP Advocacy Association  presented on the ADAP Crisis. At the same time Robert Suttle was presenting "HIV is Not a Crime" a documentary on HIV Criminalization. This issue is a hot topic right now in our community. SoI knew it was going to be well attended. I was right I walked in and the room was packed. I wanted to be there and support Robert during his first time presenting. Monique Moree and Robert ,who both appear in HIV is Not a Crime, are scheduled to share their story on an upcoming  episode of POZ I AM radio. Meeting the both of them in person after knowing them online for awhile now was refreshing. They both could of chose to hide and not talk about their situations but they chose to stand up and be a voice for all of us living with HIV. I respectfully applaud them both for the work they do.

      

Heart Rock

Before our dinner on Friday we held a Heart Circle on the beach. It was the most amazing this I ever experienced. Those that participated stood in a circle on the beach and held hands. We passed a Heart shaped rock around, the person with the heart in their hand was able to speak freely about loved ones they have lost. It was a very touching and emotional moment. While listening to others share stories of their loved ones it allowed me to reflect on mine. When the heart entered my hand, I felt a sense of calmness come over me. My heart stop pounding out of my chest just enough for me to feel the ocean breeze on my face. I lifted my head and then I felt this amazing sense of unity. I wanted to remember so many people that I lost in that moment. At first while trying not to cry I mentioned my father. I lost him over a decade ago and I wished he could see the man I have become. I know he would be proud. Then I took a moment to remember a friend named Richard. Richard was in my weekly support. I wasn't real close with Richard but in the brief time I knew him, he always went out of his way to thank me for advocating and ask me how my day was. His gentle demeanor reminded me of my father. The Heart Circle even included children and teenagers who shared in  support of and in memory of their HIV+ parents. It was truly a moment I will never forget.

While on the beach I had some young ladies who were attending the conference 

with their mother take this photo of me. 

After the Heart Circle we all piled back into the hotel for dinner. While everyone was socializing and eating we enjoyed some musical entertainment. The a capella group Harmonic Distractions sang some songs and even performed a few numbers using iPads as instruments. It was pretty cool. During their act I noticed they had 2 huge  blow up microphones. When I saw them I knew I wanted to take a photo of Jeromy and I with one of them. During the dinner they also presented the Martin Delaney - Power of One - annual award to Mississippi Activist Robin Webb for his tireless efforts in the fight against HIV/AIDS. Congrats Robin it is well deserved. Also during the dinner they announced that Tom Liberti is retiring this March, after 38 years of service to the Department of Health, and is Chief of the Bureau of HIV/AIDS. In this celebration they awarded him a fishing pole,hat and cooler to enjoy during his retirement. Thank you Tom for all your hard work you done over the years.

 

Saturday morning 8am came early. I got up had some breakfast and attended a session on Harm Reduction & Drug Interaction (HIV Drugs & Street Drugs) that was given by George Burges. I purposely went to this breakout because as an addict ,even with 10 years clean from meth, I need to remind myself how bad it was so I never go back. The breakout hit the spot.

 

Then it was off to find Jeromy to prepare for our presentation that was at 1pm. We brainstormed for a bit then headed down for lunch. Before we knew it we had to go back upstairs. Of course we went up to every table and shamelessly plugged our presentation that was in 30 minutes. Once we reached the last table we headed to the room to set up.  This was the first time Jeromy and I were speaking together so it could of went 2 ways. Really good or really bad. Overall we got some great feedback form those who attended our session. We will of-course reflect and critique but I thought we did pretty good for first timers. What I love about presenting at the Positive Living Conference is getting to meet POZ-I-AMers. People who I chat with everyday and who listen to my radio show every week. Meeting all of them is what makes my heart smile. The 1 on 1 conversations with them are priceless. We even got a POZ-I-AMers group photo which is always fun.

Photo Credit JT Talley

After our presentation I went down to support my fellow TheBody.com blogger Mark S. King On my way to Mark's presentation I spotted a panel of the AIDS Quilt. I took that as a sign to take a picture. So me and fellow advocate, Kevin Maloney did just that. Mark did a presentation on "Bridging the Viral Divide between Positive & Negative People". Mark used role playing as a way to have the audience interact with one another. I left that breakout with a better understanding of just how divided Positive and Negative people are and how much us living with HIV/AIDS still need to do. I got so wrapped up in Mark's presentation that I totally forgot to run back upstairs and see my friends Jim Geary and Jeff Allen present on Faith Based HIV Prevention Efforts. At conferences like this one it is so hard to experience all the great breakouts it has to offer. It gives me a reason to go back next year.

Purchase your own HIV Anti-Stigma T-shirt - click here

During Saturday nights dinner we had the pleasure of hearing the hilarious River Huston. River is an HIV+ Comedian, Blogger and Safer Sex Educator. I spoke to her on my radio show before but never met her face to face. I was thrilled about the opportunity. Before she started I introduced myself and had a pic taken with her. Once she got on stage and opened her mouth she had us all captivated. She literally had everyone on the edge of their seats and laughing so hard that we were crying. I don't remember if I ever laughed that hard before in my life. I laughed myself a headache. My T-cells must of multiplied within those 90 minutes. She was just what the doctor ordered.

I then met up with Jeff and Jim after the dinner. I wanted to reconnect with them again since I missed their breakout earlier that day. When I get a chance to speak with activists like these 2 guys I hang on every word they say. These moments and these conversations are priceless. These two guys gave me some incredible feedback on our presentation and my work as an activist. I was on cloud nine after my visit with them. Later that evening they held a Dance Party in one of the conference rooms. People get the chance to dance, relax or just socialize. It was also when I took the time to say good by to every since I was leaving in the morning.

Jeromy and I had an early flight on Sunday. We met Wendy in the lobby at 9am and then off to the airport. Jeromy and I were on the same flight to Atlanta. Once there we had lunch, took one last photo and then parted our separate ways. Only to pick up the phone in 4 hours to host a  POZ I AM radio show that night. We did a full show of Reflecting on the PL15 Conference. We had people call in and share their experience at PL15 conference. We even had one group call in who were still traveling home from the conference. They stopped in a McDonalds in Mississippi and opened their laptop to listen to the show live. I was so touched by them doing that.

I honestly met and reconnected with so many incredible people. The diversity of this conference is another bonus if you ask me. The conference was attended by at least 400 people living with HIV/AIDS. There were attendees from 22 states and from all walks of life. Gay - Straight - Transgender We were all were represented at PL15. That's because HIV/AIDS is a HUMAN issue. I met this one guy named Will who has been living with the virus for 33 years. That is longer then I have been on this earth. The next day I turn around and met someone who was diagnosed 3 weeks ago. I was shocked. The amount courage it took for him to go to a conference after 3 weeks of knowing his HIV status is tremendous. I couldn't think of a better place for him to be. I also met a hilarious group 5 individuals from Alabama who traveled to the conference together and were all first time attendees. Meeting these people and making life long connections with them is what Positive Living is all about.

   

The Positive Living conference is something that has changed the lives of those that have attended. If you are able to attend this conference in the future I highly recommend it. It is like no other I have attended. I wanted to send a special thank you to Butch Mckay, Rachel and the entire staff of OASIS (Okaloosa AIDS Support & Informational Services) for all the hard work in putting this fabulous conference together. This fantastic conference is in need of some major funding in order to return next year for a PL16. Jeromy and I took a pledge to help raise funds for Positive Living 16. If you or someone you know would like to make a donation toward helping PL16 happen next year . Please contact Butch McKay and tell him Robert & Jeromy sent ya.

Listen to the history of the Positive Living Conferences with Butch McKay 

Listen to the Reflections of PL15  - POZ-I-AM Radio Show

My Positive Living Conference Experience

From March 10th -13th I had the pleasure of presenting a workshop at the Positive Living 14 Conference in Fort Walton Beach, Florida. I was very excited when my abstract was accepted by OASIS (Okaloosa AIDS Support & Informational Services) I was told all about this amazing conference before hand but what people told me about it, didn't hold a candle to what I experienced. There were 433 attendees and 206 of them were first time attendees. I was one of the first timers. I was never at a conference where most of those who attended were HIV positive. I was told out of the 433 attendees 95% or more of them were HIV positive. Just knowing that allowed you to let your guard down and just be yourself. When I arrived at my hotel and walked out my back door, I was blown away by the beautiful beach. It looked like a postcard. I knew from that moment that this conference was gonna be a great experience.

 

On Friday morning at 8am I attended the Activate U workshop led by Butch Mckay ,Jesse Fry and Rick Vitale. There was a feeling of magic in the air when I walked into the first workshop. The workshop began at 10am and started off my showing a film called Bloodlines. I have to say that seeing this  film was one of my favorite parts of the entire conference. The Activate U Advocacy Academy is a program funded by the National AIDS Fund to promote grassroots advocacy training in north Florida. Activate U under OASIS provides workshops throughout northern Florida that teaches the basics on how to effectively advocate on HIV/AIDS issues and how to locate, properly write, or contact elected officials for your district.With the ADAP crisis a huge issue in Florida this was a great workshop to start off with. Of course I was happy to see Dab Garner founder of Dab the AIDS Bear Project there spreading his 30 year message of Hope.

Since I passionate about the AIDS Drugs Assistance Programs waiting lists at 3:45pm I attended the ADAP Crisis workshop that was presented by my friend and fellow ADAP Advocacy Association  board member, Brandon Macsata. This workshop was amazing despite Brandon missing his flight and presenting it via telephone. I am not surprised at all. Brandon is such a great speaker. With the ADAP waiting lists reaching over 7,000 people this workshop brought out so much passion in those that attended. I think the one thing that shocked me was that the ADAP waiting list has grown over 900% in the last year. That is not a typo over 900%. At one point a woman stood up and shared her personal story of losing her husband to this disease and not having medications to save him. I think when she finished there wasn't a dry eye in the house. Everyone offered hugs to her when the workshop finished.

 

Next was a break followed by dinner and then some welcoming remarks from Butch Mckay the Executive Director of OASIS and then an update on HIV in the Southeast by Tom Liberti. We were then treated to some musical entertainment by the fabulous Redd.

Saturday Morning came early ... I woke up at 7am to get some breakfast before attending Mark King's workshop - My Fabulous Disease. I wasn't missing this workshop for anything. I knew it would be humorous, touching and educational throughout the 90 mins. Mark has an amazing way of connecting with people when he speaks. The man is a true advocate and is someone who I strive to be more like as I continue to get my feet wet in this whole speaking arena. There were times when people were falling out of their seat laughing and times when it was so emotional the room became silent. We could of heard a pin drop at points. Everyone was so captivated they were sitting on the edge of their seats and hanging on his every word. For some it was the first time they laughed in a long time. Humor helps people deal with difficult issues. Mark not only shared his story but also shared the history of HIV/AIDS with us all. If you have never visited My Fabulous Disease then I highly recommend that you do.

After that  there were two workshops I wanted to attend that started at 10:15am. I first sat in on Sean Strub's workshop on HIV Criminalization. Sean is the founder of  POZ magazine and is currently involved with the Positive Justice Project. This is a very important topic that all people living with HIV/AIDS should be concerned about. The laws are different from state to state and it makes it confusing for many HIV positive people. The worst part about it is that some HIV positive individuals are being sentenced to 20+ years in jail without even passing the virus to another person. They are being prosecuted for not disclosing their status or for spitting on someone. Even though HIV can not be transmitted through saliva. In 2011 people should be educated enough to know how the virus is transmitted and how to protect themselves.

I then realized that my friend Cathy Robinson Pickett was also doing a workshop at the same time so I ran up 6 flights of stairs to catch the end of her presentation. Her workshop was on HIV and Domestic Violence. Cathy hosts a podcast called Straight Talk with Cathy. You all should check out her website and podcast.

At 1pm I had the privilege of presenting my own workshop "Finding HIV Social Support via POZIAM and other social networks". This was my first workshop ever. I was excited to be in front of an audience full of HIV positive people.  I shared my story which led to why I created POZIAM. I covered the use Facebook and Twitter to find HIV info and to reach those living with HIV. There were about 50 people present in the room during my presentation some of them were already POZIAMers and some of them never heard of POZIAM before the workshop. I was nervous and excited all at the same time. I loved being able to interact with others who understands what it is like to be positive. Knowing your not alone is big thing when your diagnosed. It was nice to meet POZIAMers face to face. Having online friendships with some of these individuals made me feel like I already knew them before meeting them. I had the honor of meeting fellow POZIAMer  Overall I think it went well. As I was cleaning up from my workshop, I also crossed paths with Jim Geary the Author of Delicate Courage - A Memoir of Jim Geary. Things happen for a reason so I felt I needed to purchase his book. You all know I am a slow reader. I look forward to reading it.

  

 

After my workshop I then went to Larry Frampton's workshop on HIV and Aging. It was packed with people and great information. Half way through I went back up stairs and attended Scott Boots workshop on Healthy Relationships which was also very informative and eye opening.

 

We were all invited by Michael Rajner to attend a memorial service on the beach at 6pm for fellow activist, Randy Allgaier. I only met Randy once before at the ADAP summit in Washington D.C. and felt compelled to attend. I am glad that I did. Randy touched many with his friendship and it was shown through the words of those who knew him. Some prayers were said and then we were led into a short meditation by Dr David Fawcett. We then all took sparklers and spread rose petals into the waves. The memorial service was beautiful and was a moment I will never forget. Standing in a circle holding hands on the beach with people who understood you, it was powerful. It moved me in a way that I can't even put it into words. I know Randy is looking down and watching over his friends who continue the fight.

  

 

Then there was a short break and then we all returned for dinner around 7pm. During the dinner they presented  2 awards. First they surprised Butch Mckay with the Host with a Heart Award and then presented  Jesse Fry, with the Power of One Annual Award. Congratulations to Butch & Jesse ! They are both amazing guys. The dinner closed with an awesome speech from Paul Kawata, the Executive Director at National Minority AIDS Council. He was hilarious and inspiring. Paul was amazing and had the whole room captivated by his message.I could of listened to him all night. The National Minority AIDS Council is having their 15th Annual United States Conference on AIDS, November 10-13th in Chicago. So start saving your money now to attend. I am hoping to attend this year.

 

After dinner we moved downstairs to the Ambassador room to enjoy the rest of the evening dancing and singing karaoke. There were a lot more dancing then singing. It was great to be able to let you hair down and socialize with everyone. I will tell you this I met many new friends on this trip and that alone is worth attending this conference. Overall it was a great experience and I highly recommend that you try to make next years Positive Living Conference 15. It is something I will never forget. I love that there was such a diversity of  people and workshops. There were so many great people that I wish I had more time to meet. Well there is always next year. I wanted to send a special thank you to Butch Mckay and Rachel Bauer for organizing the entire conference and allowing me to come and present a workshop. You both did an excellent job and helped many including myself while doing it.

 

Photo Credit - Jt Talley

There is a FB group that was created to offer feedback about the Positive Living Conference. Here are some feedback from other attendees of the conference. Of course I have their permission to share them.

Visit OASIS (Okaloosa AIDS Support & Informational Services) for their upcoming events and conferences.